Hypermobile Ehlers-Danlos Syndrome (hEDS) undiagnosed for 23 years

- 0:00 Introduction - 1:09 Emily Kate and Gez check in - 3:38 Meet Dr Lucy Foulkes - 8:13 Chronic migraine and medication overuse - 12:17 Moving pain and dismissive specialists - 20:07 Bladder, skin and digestive symptoms - 26:50 Nutrition, caffeine and self-blame - 36:50 Weighing the cost of holidays and plans - 39:03 How a stranger's message led to an hEDS diagnosis - 46:00 Energy, boundaries and exercise - 53:02 Navigating health advice online - 56:07 Self-diagnosis and mental health awareness - 1:01:50 Diagnosis without letting it define you - 1:06:05 Emily Kate and Gez reflect