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Research
Moving the science forward together
Thousands of Visible members are contributing to research and helping accelerate the search for new treatments and cures.
In collaboration with leading educational and research institutions
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Your data can uncover answers
Over 100 million people are living with complex chronic conditions.
Yet these conditions are overlooked by science and underserved by healthcare, often leaving people without the support they need.
Changing that starts with more and better evidence. Together, we can help build a better understanding of these conditions.
Contribute to research as you track your health
The data you collect with Visible is private by default. If you choose to, you can join more than 25,000 Visible members who are sharing their data with researchers.
Your data is anonymized automatically and shared as you track your health, with nothing extra to do.
You’ll help build a richer picture of what living with complex chronic illness really looks like, supporting researchers as they advance our understanding.
Join studies and see what we’re learning
Join studies in the app
Volunteer to share anonymized data and contribute to new research
Find clinical trials
Explore clinical trials, matched to your diagnosis and location.
See what we’re learning
Read peer-reviewed research and insights from Visible and our research partners.
Together we’re making invisible illness visible.
Visible members who have chosen to share anonymized data have supported 12 studies.
data points have been shared anonymously, giving researchers a fuller picture.
Progress starts with measurement. The conditions have long lacked objective ways to understand what’s happening in the body. Biometrics are changing that, giving researchers the evidence to move the field forward faster.
- Harry Leeming, co-founder
Research made possible by our members
A new patient-led approach to building research infrastructure and evidence generation
A new kind of research infrastructure
Visible is pioneering a new model for healthcare innovation: a platform that helps people manage complex chronic illness today while accelerating the research needed for better treatments tomorrow.
In partnership with researchers at:
Mt Sinai
Journal:
Oxford Open Immunology
Digital physiological biomarkers predict within-person symptom changes in complex chronic illness
Morning biometrics and symptom prediction
By analysing over 530,000 check-ins from Visible members, we found that daily biometric changes often appear before people report feeling worse. This research supports the approach behind Visible’s Stability Score, helping members make informed decisions about pacing and recovery.
In partnership with researchers at:
Yale, University of Oxford, Mt Sinai, PolyBio Research Foundation
Journal:
NPJ Digital Medicine
Digital health app data reveals an effect of ovarian hormones on long COVID and myalgic encephalomyelitis symptoms
Do symptoms change across the menstrual cycle?
Using data from nearly 1,000 people with Long Covid and ME/CFS, we found that symptoms change significantly across the menstrual cycle. Crashes were more common during menstruation, while people using combined hormonal contraception experienced 45% fewer crashes and reported lower overall symptom severity.
In partnership with researchers at:
Imperial College London
Journal:
(preprint) Lancet Digital Health
Pacing with a heart rate monitor for people with myalgic encephalomyelitis/chronic fatigue syndrome and long COVID: a feasibility study
Advancing pacing research
We demonstrated that heart-rate-guided pacing can be studied safely and rigorously using wearable technology. The results provide a foundation for larger clinical trials and future evidence-based approaches to energy management.
In partnership with researchers at:
Physios for ME, University of Liverpool, University of the Pacific
Journal:
Fatigue: Biomedicine, Health & Behavior
Wearable technology in the management of complex chronic illness: preliminary survey results on self-reported outcomes
Real-world impact for people with complex chronic illness
We surveyed more than 1,300 Visible members and found that 94% reported a better understanding of their energy limits, 85% felt more in control of their condition, and 77% experienced fewer or less severe crashes. These results show how greater visibility into symptoms and exertion can translate into meaningful improvements in daily life.
In partnership with researchers at:
Mt Sinai, PolyBio Research Foundation
Journal:
Frontiers in Digital Health
An Open-Label Feasibility Study of Remdesivir in Long COVID: Results from the ERASE LC Trial
Testing an antiviral treatment for Long Covid
We supported ERASE LC, the UK's first antiviral trial for Long Covid. People with Long Covid received a course of the antiviral remdesivir, and Visible data was one of the ways their symptoms were tracked. 97% completed treatment with no serious side effects, and early measures of fatigue and walking distance improved. Larger, randomised trials are now needed to test whether it works.
In partnership with researchers at:
Loughborough University, University of Derby, University of Plymouth, University of Exeter
Journal:
Preprint
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Take part in
research with the
free Visible app
You don’t need to own a Visible Band to take part in research. Download the free app to start making a difference with your data today.
Podcast: Make Visible
Join the Visible team and leading experts, scientists and healthcare professionals as we explore the latest research and insights into complex chronic illness.
Cracking the genetic code of complex chronic illness with Steve Gardiner, PrecisionLife
Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS
Visible collaborates with researchers from leading institutions
Working together towards better treatments and care.
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Frequently asked questions
Visible hosts selected research studies in the app, each approved by the Institutional Review Board (IRB). To see which studies are open, visit the Community section of the Visible app. Each study explains its purpose, what’s involved and what taking part could mean for you. Both free and paid Visible members can take part. If you meet a study’s requirements, you’ll be invited to opt in and share your data anonymously.
Yes. Your privacy is our priority. Your Visible data is stored in an encrypted database and is not shared with third parties unless you opt in to a research study. If you do, your data is anonymized and shared only with the research team, so it cannot be linked back to you.
You can withdraw from a study at any time, immediately ending any future data collection.
No. You do not need a Visible band to take part in research studies with Visible, but you do need the free Visible app. Just download the app for Android or iOS to start understanding your illness and add your experience to research.
Each morning, use your phone camera to measure your heart rate and heart rate variability (HRV) and get a Stability Score. Track your symptoms over time, and join research studies straight from the app.
When you're ready for all-day heart rate monitoring and PacePoints, upgrade to a Visible membership and band.